Opal: PARTAGE - Patients and Researchers Team-up And Generate Evidence
Artificial intelligence is increasingly prevalent in radiation oncology; however, such research requires large amounts of real-world data from varied patients. While these data exist, they are often legally unreachable and spread across multiple institutions, making them largely inaccessible to researchers. Moreover, patients themselves would benefit from having better access to their data, as education about one’s treatment leads to reduced anxiety and potentially better treatment outcomes. This project addresses both issues by giving patients access to their radiation oncology data and control over who they share it with for research. The goal is to create a patient-centric data donation platform within the Opal patient portal (opalmedapps.com) that will engage and empower radiotherapy patients to contribute to research. Specifically, this project will allow patients to participate in research studies, as well as view their medical scans and radiotherapy treatment plans all within the app.